Keegan Update

Well, Keegan has been through a lot since my last update of him. He started eating less and starting losing weight, so we went into the hospital to have a scope and barium swallow test to see if we could figure out why he would not want to eat. The scope was last Wednesday and after that test we were admitted to the hospital. The scope looked good. The next day we had the barium swallow test and found out he silently aspirates, meaning that sometimes when he drinks the liquid goes into his lungs instead of stomach. So now what he takes by mouth we have to thicken with rice cereal to a thickness of honey; that makes it safe for him to drink. But since he has already lost weight and we need to build him back up, they put in a ng feeding tube to supplement. That is the one that goes through his nose to his stomach. We spent 3 days in Phoenix Children's Hospital and were so happy to come home Friday night.

He is doing good, so much happier to be at home. We are so happy to have found an answer and to get him back on the right track, we are now just adjusting to a whole new way of life for now. They had all kinds of doctors check him out and everything else with him looks good, we just have to work on his feedings and plump him up. Right now he is getting about twice as much per day as he was getting so we feel confident that the weight will come. Matt, being a numbers guy, figured out how many calories Keegan is getting for his weight and came to the conclusion that he would have to consume over 8,000 calories a day to be equal to him, WOW!! I don't think Matt will be keeping up with Keegan.

Yes, that is Keegan in purple...apparently they do not have gowns that small in any other color!?! Seems silly to me. Also, the cribs there are a little prison like, glad to be home!!