Well, we finally got some answers that we have been looking for. I spoke with Dr. Nurko (Boston) on Sunday evening and we now have an answer and a plan. Everything with Keegan's abdominal ultrasound and scope were normal. The motility study showed that his intestines were healthy and functioning normally. The problem is with his stomach, it had an abnormal response to a meal; meaning it did not respond to the meal being present. Dr. N said it should not be a life-long issue, Keegan should grow out it in time. He did have a good response to erythromycin, but that is not our only answer. So for step one, we are going to add Periactin as a second medication to see if we get a better response with both. The hope is that the combination of the medications will help the stomach contract and move food through. Ideally this would also stop the vomiting, since the food would be moving and not just sitting in his stomach. There are other treatment options, but we are praying this one works.
Thanks for all the prayers through our journey. We know we still have a long road ahead, but we feel much relief to have found some answers. Also, to have found a GREAT doctor wanting the same goal as us - to make Keegan more comfortable!
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